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About Data

Donor Registry Data

View Donor Registry Data.

The C.W. Bill Young Cell Transplantation Program (CWBYCTP), also called the Be The Match Registry®, reports statistics about the registry annually. The registry is a listing of potential marrow donors and donated cord blood units. The donor registry also includes cord blood units from the National Cord Blood Inventory. Physicians search the registry to find blood-forming cells that closely match their patients’ cells so they can get the transplant they need.

The CWBYCTP registry is operated under Federal contracts by the National Marrow Donor Program®. Donor registry data are reported from Oct. 1 - Sept. 30 by the NMDP.

Stem Cell Therapeutic Outcomes Database (SCTOD)

The transplant activity and transplant outcomes data are reported to the transplant outcomes registry of the C.W. Bill Young Cell Transplantation Program, also called the Stem Cell Therapeutic Outcomes Database (SCTOD). Collecting data and analyzing outcomes about transplants using cells from related and unrelated (allogeneic) donors and cord blood units are requirements of the CWBYCTP. Although not required, all available data about transplants using cells from the patient (autologous) are also included in the transplant outcomes registry and these reports.

Pre-transplant recipient and donor data and post-transplant recipient data are collected from the transplant centers in a standardized electronic format using the CIBMTR FormsNet3SM or using AGNIS®. Launched in December of 2007, these systems collect over 95% of allogeneic (unrelated and related) HCTs performed in the United States transplant centers. 

The SCTOD is managed under a Federal contract by Center for International Blood and Marrow Transplant Research® (CIBMTR) who makes the data available for research or request.  
 

Additional Resources

Glossary
View the list of terms to understand how the reports.

Participating Transplant Centers
Review the list of transplant centers that report data about transplants.

List of Diseases
Read the list to help you understand how diseases are organized in the broad categories.

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