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Content Inventory

This inventory of website content:

  • Was created as required by Section 207(f)(2) of the E-Government Act of 2002
  • Is intended to be comprehensive, and to represent website content for the C.W. Bill Young Cell Transplantation Program and all contracts under the Program

For more information about the website content inventory and the E-Gov Act, please visit Section 207 of the E-Government Act of 2002

Definitions

The tables of website content, below, use the following definitions:

Status

  • C: currently available on a website
  • E: exists in some form, but is not on a website
  • D: needs to be developed

Priority

  • Priority 1: Required by law, regulation, Presidential directive, or other official directive, or to ensure national security.
  • Priority 2: Mission-critical and essential for program operations, but not required by law, regulation, or Presidential directive (that is, information or services tied directly to an agency's mission or strategic plan).
  • Priority 3: Frequently requested information or services that would improve business processes and/or customer service to the public. (For example, most commonly used forms, documents, applications, transactions, etc.)
  • Priority 4: Other information.

Inventory

Information for the General Public

Information for Marrow Donors

Information for Expectant Parents

Information for Patients

Information for Physicians and Healthcare Professionals

Information for the General Public

Program information

Information Status Priority Publication Schedule
Advisory Council C 1 Available
Legislative overview C 3 Available
Program contracts' summaries and contractors C 3 Available

Program data

Information Status Priority Publication Schedule
Registry data C 3 Available
National Cord Blood Inventory data C 3 Available
National transplant survival outcomes data C 2 Available
National transplant data request form C 3 Available
National Transplant Center Specific Outcomes Report C 1 Available

Program research

Information Status Priority Publication Schedule
Research data and published materials C 2 Available

Information for Marrow Donors

The need for more marrow donors

Information Status Priority Publication Schedule
Why a large and diverse registry of potential volunteer marrow donors is needed to increase the chances for all patients to find a match C 2 Available

Joining the registry

Information Status Priority Publication Schedule
How to join the registry through local donor drives and recruitment events C 2 Available
How to join the registry online C 2 Available

Donating marrow and PBSC

Information Status Priority Publication Schedule
Marrow and peripheral blood stem cell (PBSC) transplantation and donation information C 2 Available

Information for Expectant Parents

The need for cord blood donation

Information Status Priority Publication Schedule
Why increasing the number of public cord blood units available for transplantation is important C 2 Available

Options that expectant parents may have as an alternative to discarding their baby's cord blood

Information Status Priority Publication Schedule
Public donation, including the process and how to donate C 2 Available
Family banking C 2 Available
Directed donation C 2 Available
Research C 2 Available

Information for Patients

Educational information

Information Status Priority Publication Schedule
Disease and treatment information C 2 Available
Marrow and umbilical cord blood transplant information, including the search process, matching, procurement, transplantation, and post-transplant care C 2 Available
Choosing a transplant center C 2 Available
Planning for transplant costs C 2 Available

Registry search

Information Status Priority Publication Schedule
Search the registry for potential matches C 2 Available
Access to search progress D 2 To be determined

Support resources

Information Status Priority Publication Schedule
Case management resources C 2 Available
Patient-related organizations C 3 Available
Patient education and support events C 3 Available

Program data

Information Status Priority Publication Schedule
Registry data C 3 Available
National Cord Blood Inventory data C 3 Available
National transplant survival outcomes data C 2 Available
National transplant data request form C 3 Available
National Transplant Center Specific Outcomes Report C 1 Available

Information for Physicians and Healthcare Professionals

Educational information - hematopoietic stem cell transplantation

Information Status Priority Publication Schedule
Advances in autologous and allogeneic transplantation C 2 Available
Transplant indications, timing, and referral C 2 Available
Searching for an unrelated marrow donor or umbilical cord blood unit C 2 Available
Medical education programs and materials C 2 Available

Program data

Information Status Priority Publication Schedule
Registry data C 3 Available
National Cord Blood Inventory data C 3 Available
National transplant survival outcomes data C 2 Available
National transplant data request form C 3 Available
National Transplant Center Specific Outcomes Report C 1 Available

Program research

Information Status Priority Publication Schedule
National Marrow Donor Program Research Sample Repository inventory and request procedure E 2 Available
National Marrow Donor Program Research Sample Repository query tool D 2 To be determined
Research data and published materials C 2 Available
Date Last Reviewed: