This inventory of website content:
- Was created as required by Section 207(f)(2) of the E-Government Act of 2002
- Is intended to be comprehensive, and to represent website content for the C.W. Bill Young Cell Transplantation Program and all contracts under the Program
For more information about the website content inventory and the E-Gov Act, please visit Section 207 of the E-Government Act of 2002
Definitions
The tables of website content, below, use the following definitions:
Status
- C: currently available on a website
- E: exists in some form, but is not on a website
- D: needs to be developed
Priority
- Priority 1: Required by law, regulation, Presidential directive, or other official directive, or to ensure national security.
- Priority 2: Mission-critical and essential for program operations, but not required by law, regulation, or Presidential directive (that is, information or services tied directly to an agency's mission or strategic plan).
- Priority 3: Frequently requested information or services that would improve business processes and/or customer service to the public. (For example, most commonly used forms, documents, applications, transactions, etc.)
- Priority 4: Other information.
Inventory
Information for the General Public
Information for Marrow Donors
Information for Expectant Parents
Information for Patients
Information for Physicians and Healthcare Professionals
Information for the General Public
Program information
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Advisory Council |
C |
1 |
Available |
| Legislative overview |
C |
3 |
Available |
| Program contracts' summaries and contractors |
C |
3 |
Available |
Program data
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Registry data |
C |
3 |
Available |
| National Cord Blood Inventory data |
C |
3 |
Available |
| National transplant survival outcomes data |
C |
2 |
Available |
| National transplant data request form |
C |
3 |
Available |
| National Transplant Center Specific Outcomes Report |
C |
1 |
Available |
Program research
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Research data and published materials |
C |
2 |
Available |
Information for Marrow Donors
The need for more marrow donors
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Why a large and diverse registry of potential volunteer marrow donors is needed to increase the chances for all patients to find a match |
C |
2 |
Available |
Joining the registry
| Information |
Status |
Priority |
Publication Schedule |
|---|
| How to join the registry through local donor drives and recruitment events |
C |
2 |
Available |
| How to join the registry online |
C |
2 |
Available |
Donating marrow and PBSC
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Marrow and peripheral blood stem cell (PBSC) transplantation and donation information |
C |
2 |
Available |
Information for Expectant Parents
The need for cord blood donation
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Why increasing the number of public cord blood units available for transplantation is important |
C |
2 |
Available |
Options that expectant parents may have as an alternative to discarding their baby's cord blood
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Public donation, including the process and how to donate |
C |
2 |
Available |
| Family banking |
C |
2 |
Available |
| Directed donation |
C |
2 |
Available |
| Research |
C |
2 |
Available |
Information for Patients
Educational information
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Disease and treatment information |
C |
2 |
Available |
| Marrow and umbilical cord blood transplant information, including the search process, matching, procurement, transplantation, and post-transplant care |
C |
2 |
Available |
| Choosing a transplant center |
C |
2 |
Available |
| Planning for transplant costs |
C |
2 |
Available |
Registry search
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Search the registry for potential matches |
C |
2 |
Available |
| Access to search progress |
D |
2 |
To be determined |
Support resources
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Case management resources |
C |
2 |
Available |
| Patient-related organizations |
C |
3 |
Available |
| Patient education and support events |
C |
3 |
Available |
Program data
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Registry data |
C |
3 |
Available |
| National Cord Blood Inventory data |
C |
3 |
Available |
| National transplant survival outcomes data |
C |
2 |
Available |
| National transplant data request form |
C |
3 |
Available |
| National Transplant Center Specific Outcomes Report |
C |
1 |
Available |
Information for Physicians and Healthcare Professionals
Educational information - hematopoietic stem cell transplantation
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Advances in autologous and allogeneic transplantation |
C |
2 |
Available |
| Transplant indications, timing, and referral |
C |
2 |
Available |
| Searching for an unrelated marrow donor or umbilical cord blood unit |
C |
2 |
Available |
| Medical education programs and materials |
C |
2 |
Available |
Program data
| Information |
Status |
Priority |
Publication Schedule |
|---|
| Registry data |
C |
3 |
Available |
| National Cord Blood Inventory data |
C |
3 |
Available |
| National transplant survival outcomes data |
C |
2 |
Available |
| National transplant data request form |
C |
3 |
Available |
| National Transplant Center Specific Outcomes Report |
C |
1 |
Available |
Program research
| Information |
Status |
Priority |
Publication Schedule |
|---|
| National Marrow Donor Program Research Sample Repository inventory and request procedure |
E |
2 |
Available |
| National Marrow Donor Program Research Sample Repository query tool |
D |
2 |
To be determined |
| Research data and published materials |
C |
2 |
Available |