This inventory of website content:
Was created as required by Section 207(f)(2) of the E-Government Act of 2002 Is intended to be comprehensive, and to represent website content for the C.W. Bill Young Cell Transplantation Program and all contracts under the Program For more information about the website content inventory and the E-Gov Act, please visit Section 207 of the E-Government Act of 2002(link is external) .
Definitions The tables of website content, below, use the following definitions:
Status C: currently available on a websiteE: exists in some form, but is not on a websiteD: needs to be developedPriority Priority 1: Required by law, regulation, Presidential directive, or other official directive, or to ensure national securityPriority 2: Mission-critical and essential for program operations, but not required by law, regulation, or Presidential directive (that is, information or services tied directly to an agency's mission or strategic plan)Priority 3: Frequently requested information or services that would improve business processes and/or customer service to the public. (for example, most commonly used forms, documents, applications, transactions, etc.)Priority 4: Other informationInventory Information for the General Public
Information for Marrow Donors
Information for Expectant Parents
Information for Patients
Information for Physicians and Healthcare Professionals
Information for the general public Program information Information Status Priority Publication Schedule Advisory Council C 1 Available Legislative overview C 3 Available Program contracts' summaries and contractors C 3 Available
Program data Information Status Priority Publication Schedule Registry data C 3 Available National Cord Blood Inventory data C 3 Available National transplant survival outcomes data C 2 Available National transplant data request form C 3 Available National Transplant Center Specific Outcomes Report C 1 Available
Program research Information Status Priority Publication Schedule Research data and published materials C 2 Available
Information for marrow donors The need for more marrow donors Information Status Priority Publication Schedule Why a large and diverse registry of potential volunteer marrow donors is needed to increase the chances for all patients to find a match C 2 Available
Joining the registry Information Status Priority Publication Schedule How to join the registry through local donor drives and recruitment events C 2 Available How to join the registry online C 2 Available
Donating marrow and PBSC Information Status Priority Publication Schedule Marrow and peripheral blood stem cell (PBSC) transplantation and donation information C 2 Available
Information for expectant parents The need for cord blood donation Information Status Priority Publication Schedule Why increasing the number of public cord blood units available for transplantation is important C 2 Available
Options that expectant parents may have as an alternative to discarding their baby's cord blood Information Status Priority Publication Schedule Public donation, including the process and how to donate C 2 Available Family banking C 2 Available Directed donation C 2 Available Research C 2 Available
Information for patients Educational information Information Status Priority Publication Schedule Disease and treatment information C 2 Available Marrow and umbilical cord blood transplant information, including the search process, matching, procurement, transplantation, and post-transplant care C 2 Available Choosing a transplant center C 2 Available Planning for transplant costs C 2 Available
Registry search Information Status Priority Publication Schedule Search the registry for potential matches C 2 Available Access to search progress D 2 Available
Support resources Information Status Priority Publication Schedule Case management resources C 2 Available Patient-related organizations C 3 Available Patient education and support events C 3 Available
Program data Information Status Priority Publication Schedule Registry data C 3 Available National Cord Blood Inventory data C 3 Available National transplant survival outcomes data C 2 Available National transplant data request form C 3 Available National Transplant Center Specific Outcomes Report C 1 Available
Information for physicians and healthcare professionals Educational information - hematopoietic stem cell transplantation Information Status Priority Publication Schedule Advances in autologous and allogeneic transplantation C 2 Available Transplant indications, timing, and referral C 2 Available Searching for an unrelated marrow donor or umbilical cord blood unit C 2 Available Medical education programs and materials C 2 Available
Program data Information Status Priority Publication Schedule Registry data C 3 Available National Cord Blood Inventory data C 3 Available National transplant survival outcomes data C 2 Available National transplant data request form C 3 Available National Transplant Center Specific Outcomes Report C 1 Available
Program research Information Status Priority Publication Schedule National Marrow Donor Program Research Sample Repository inventory and request procedure C 2 Available Research data and published materials C 2 Available