September 15, 2014

Recommendations

Recommendation 25

ACBSCT recommends that the Secretary recognize hematopoietic transplantation for sickle cell disease as a covered benefit for all Federal programs for which the Secretary has appropriate responsibility and oversight.

Recommendation 26

ACBSCT recommends that the Secretary direct HRSA and other HHS agencies to collaborate with the CIBMTR to review research level data collection on allotransplants performed for sickle cell disease (SCD) and consider appropriate reimbursement to optimize research data collection. This review should include SCD-specific data elements collected, the completeness of data collection and mechanisms for reimbursement.

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